It's Raining Meds...Hallelujah

So my doc gave me happy pills today to help take the edge off everything. My inner voice was speaking loudly in my ear: Can't you get chocolate martinis in pill form? But alas, no. And since I don't intend to take up drinking, Zoloft will have to do.

DS stayed home today. We all (DS, DD, & I) went to my doctor's appointment. Then we went to place of joy: Eat 'N Park. Once the kidlets stuffed themselves until they were practically falling asleep (until the waitress offered Smiley cookies - then they were magically re-animated), we drove about 5 miles to the imaging center where DS had a bone age scan. I think we waited for 20 minutes and the scan took about 2 minutes! They only had to x-ray his hand. From there, we ran home and everyone used the restroom. We walked trusty Puggle and headed back out the door for DD's fitting for the holiday fashion show she'll be in. OMG - let me just say that the dress is adorable! It's a cream color with champagne embroidery and subtle gold sequins (not trashy) with chocolate trim around the bottom and the waist and a vintage flower on the trim on the waist. Too cute!

DH took kidlets to a co-worker's house to trick or treat and gave me an hour off!! (Can you hear the angel choir singing, or is that just me?) The fam is now safely home. Pics are digiscrapped. Kids are on sugar-high. And mom is ready for bed! (Of course that means I'll get to lay down in about 2 hours. Sleep is for the weak I tell you!)

It's Raining Meds...Hallelujah

Tired

It's 9:00p and I'm drained. Emotionally and physically. DS is doing worse. He is having meltdown after meltdown. We saw the pediatrician who is referring us to a psychiatrist who specializes in children on the spectrum. I love my little guy so much, it just hurts me to see him hurting so much and to know that there's nothing I can do to help. I can't kiss away this boo-boo.

School is kinda a big science experiment right now. There are a few tireless staff members that are racking their brains trying to figure out what we can do to help this kiddo. Our advocate and even the director of our autism center are brainstorming. The doctor is brainstorming. We're all working together to come up with something. You'd think 20 professionals would have no problem, but DS is so complex that even Autism docs are puzzled by his multiple disabilities.

My trust in God keeps me going.. I trust that HE will give us the strength to keep fighting for this little guy. We have shuttled this kid to and from so many doctors, specialists, SPECIAL specialists, therapists, and groups. We have left virtually no stone unturned. Sometimes, I lose count of all of the doctors, tests, therapies, and medicines this kid's been through. It's like a never ending parade of who's who in medicine. I think he's a bit tired of being everyone's guinea pig as well.

Thankfully, my husband and I have a really strong marriage and a strong family bond with our kids.

Sometimes I wonder if parents of typical children know just how easy their lives are. They usually assume that parents of kids on the spectrum must be horrible parents. Why else would their children have these issues? That in itself is hard to deal with : ignorant people. I wish they could spend just one day in my shoes. They wouldn't last 6 hours.

It pains me to know that so many kids, like DS, have these issues and don't receive treatment because their insurance doesn't cover it. They don't have $50,000/yr. to spend on appropriate therapies. There are parents who balk at having to pay extra money for school fees.. can you imagine how they would react to the extra $1000/mo. we spend in medical expenses for our child?

I don't mean to pity myself. This is just a release for me. I have to let it all out or I'll burst. I can't do that at home in front of DS. He needs mom to be his strength when he has none - not a basketcase of a mom that is entirely ineffective.

PLEASE - when you vote this Tuesday, vote for someone who will make a difference in the lives of these autistics. These kids aren't receiving medical care because insurance companies refuse to cover them. They are bright, wonderful kids who have a future just like any other kid IF they get the therapy they need and more importantly, deserve. How can people just throw these kids away? So many kids on the spectrum become scientists, computer engineers, mechanical or electrical engineers... we can't afford NOT to help these kiddos.

Signing off and heading to bed..

Tired

There's a chocolate martini at the end of every rainbow

Yesterday morning, after searching through the entire apartment for and locating mysterious vanishing dance ensemble, I spent 20 minutes handwashing the garment. I then placed it in the dryer on no heat. Bathed the kidlet. Jumped in the shower. All was suspiciously going well.. TOO WELL. It was then that I was reminded that life couldn't possibly be that easy. I got a phone call from DS's school stating that he was in the nurse's office ill. I packed up the tutu-clad 3 yo and headed to the school (20 minutes away). When we got there, I got to talk with the nurse and emotional support teacher about his GFCF diet, proceeded by a conversation with the principal about DS's anxiety and poor school performance. (DS has moderate Asperger's Syndrome and a host of other issues.) Then I threw kidlets in car only to have missed DD's dance class altogether.

I had volunteered as room mom for the preschool Halloween party and dragged 13 yo son with us to said party. Oh, the excitement was oozing from every eye roll and sigh! After the party (during which my daughter was uncharacteristically being bratzilla), I picked up books from the library and headed home to start on dinner.

I ended up spending the next several hours on the phone with various school staff members, our advocate, grandparents, and everyone else who seemed to call between 3p - 6p.

DH got home at 6p and we all got dressed to go out to dinner (mom was frazzled to say the very least). While waiting in the restaurant to be seated, DD was dancing all about the area and singing (quite loudly). DS was worried that we wouldn't be able to find a Gluten free item (we knew they had a Gluten -Free menu ahead of time). At the same time all of this was going on, DH was telling me all about work. And all I could think of amidst the dancing, singing, worrying, and work talk was ...chocolate martini... they have chocolate martinis here...don't forget to order a chocolate martini.

I must say, it was a good chocolate martini..

There's a chocolate martini at the end of every rainbow

A fresh new blog...

Some of you may know my digiscrapping or knitting/crafting blogs - but now I'm taking a stab at a 'mommy' blog. My KPG blog is starting to get a little crowded with all of my endeavors, rants, and raves.. so here goes.

Life with an Asperger's Syndrome teenager is never dull. Just today, I was fortunate enough to experience the 13 year old eye rolling, the Aspie stimming, and the grunts of a boy who thinks mom talks to much. And all before 6:00a no less.

Life with a 3 year old girl is equally exciting. As I chased DD around the apartment (running naked through the apartment because her 'princess' dress was not clean - much to her highness' dismay), trying to catch her before the rest of the yogurt on her bobbing, traveling spoon hit the walls and carpeting, I thought to myself - what about this scene is in any way normal?

Life with an engineer/adult aspie/genius husband provides yet more texture to my already comic life.

So in this blog, I will journal about my mommy-experiences and my momma 'tude. Life is exciting around here - but I wouldn't have it any other way. Although I'm pretty sure the slightly abused Puggle would disagree.

A fresh new blog...